Friday, October 26, 2012

Positive Signs


Lydia continues to regain her strength and might even decide to walk or crawl or do something mobile this year. :) In all seriousness, her muscle development and mobility are slightly delayed after four months in a hospital room hooked-up to an IV pole, but we are told not to worry.  She has started to work with a physical therapist who comes to the home and encourages Lydia to move independently.  Lydia just prefers to be in mom's arms and who can blame her after all she has endured.  We have learned that recovery is a very slow process but we are continually encouraged by many positive signs along the way.  For example, last week Lydia was taken off her nightly IV fluids.  This has been quite a reprieve for mom and dad who no longer have to go through the nightly preparation ritual. Some medications have also been reduced and others eliminated entirely.  Her twice weekly clinic visits have been reduced to one visit per week as long she continues to intake enough fluids and stay healthy. Lydia also continues to eat well.  In fact, one night Paul mistakenly gave her an adult size portion of food which Lydia happily ate resulting in a bloated stomach that took awhile to relieve.  Although the exact amount is still being disputed, Angela estimates that Lydia digested 2 1/2 adult size portions of Stouffer's Mac N Cheese (750 calories and 37 grams of fat)!  Paul has now learned to rely a little more on the measuring cups. :)

Beep. Beep. Lydia at the wheel
Lydia continues to be a happy child with wonderful social skills.  She enjoys playing with her siblings and is now permitted to spend more time outside.  Lydia has even adapted to staying with our babysitters enabling mom and dad to have some much needed alone time.  Lydia still cannot go out to publicly enclosed places (places with lots of people, germs, and not much air flow) but this too might be possible before the end of the year.  As for sleeping, it is a challenge to settle Lydia in the evening and often times she ends up sleeping next to mom and dad.  However, once she is calm, Lydia usually enjoys several hours of uninterrupted sleep.  In a nutshell, we still have challenges but everything seems less severe and there is much HOPE. 

As always, we continue to pray for God's peace and protection.  Lydia's situation is by no means over and she continues to require a great deal of attention.  But we remain confident that God has a wonderful plan for our family and our trust will remain in Him.  We continue to be thankful for every one's thoughts and prayers.  There are many people that have served and blessed our family in countless ways over the past months.  Although we may not have personally thanked everyone, please know that all of you are greatly appreciated.  Have a wonderful weekend!

Tuesday, October 9, 2012

Test Results!

 
The much anticipated test results have arrived, and it is wonderful news!  Lydia has no leukemia cells in her body - so she remains in remission.  Additionally, the transplanted cells have grafted and reproduced healthy cells throughout Lydia's body.  This was confirmed by each of the samples taken by the bone marrow transplant team.  The doctors told us that this test result is the best we could have expected - Praise the Lord for He is Good!
 
So where do we go from here?  Lydia is still weak and highly susceptible to infection so she will remain quarantined around the home for at least another month.  The doctors will begin the process of slowly weaning her off some medicines.  Next month, we will discuss taking out her broviac line provided that Lydia is drinking enough (which she is not at this point).  Lydia's twice weekly clinic visits should also be reduced sometime within the next several weeks.  Lydia also needs to practice her walking and crawling and hopefully this will come as she regains some strength and energy.  Bottom line, we are hoping to have a rather "normal" situation by Christmas. 
 
Once again, we thank all of you for the prayers and concern over the last six months.  We are certainly not out of the woods yet, but this positive test result is extremely encouraging.
 
  
Lydia helping her brother, Daniel, put out fires.